Spatisticity

Hmm... A bit stiff this morning... Slept really well but am feeling rather stiff... Question is... MS or computeritis?!?

A quiet weekend,,,

Nothing major to report folks, really - another quiet weekend!

As far as the stiffness, as Christopher11 put in in response to me raising the issue on an MS Society forum (same post as below), "We have ms every day". It's easy to forget that, though my type of MS remits between relapses, it doesn't go away. I've got to learn to live with the 'bad' days, try not to let them get me down too much and remember that low days are "ok".

Stiffness

Ok, yesterday was a really stiff day... Used to just write them off as 'me', but now.... Am I just writing too much off to MS, or... Do other people get days where just moving around is hard work....? Thankfully better today after a good night's sleep...

Feeling goooood ;-)

My home's coming together - carer and cleaner now fully on board and working well. My new vertical blinds arrive tomorrow AND my girlfriend wasn't too mad at me about the bouquet I arranged to surprise her at work (she was away for Valentine's Day itself)...

My new vertical blinds have just been installed this afternoon - I think I should perhaps have gone for a colour but otherwise they're aboslutely fab!

On an MS note, sone stiffness but otherweise absolutely fine today, thank goodness! My mood's pretty good - I think other things going well definitely helped! A good day. :-)

Non-MS, but...

Hey, I know this is supposed to be my MS blog, but...

I just wanted to use this opportunity to tell everyone a little about the wonderful young lady I'm so lucky to share some of my life with... Anita (pictured above) & I met through the virtual 3D world of Second Life (http://www.secondlife.com/) and quickly became friends in "real life" too. I've been lucky enough to meet her back in August and we had a wonderful week together and quickly grew close - the bad weather really didn't seem to matter...! I'm so lucky to have met such a gorgeous, charming, beautful young lady who takes me for who I am and accepts me with all my faults!

Things in life have been getting her down, getting on top of her - as she says herself, her plate's not just full but overflowing! It has taken me a few months to learn to back off - I'm sorry for that & thank her for her patience - and I'm so glad that we've now reached an understanding that my love truely is unconditional and that we're friends forever, that we see what the future holds... I still do find it hard sometimes to keep my feelings under control but... I'm trying (very trying, I know!) and we've agreed a code that, when things get too much, she can throw a (virtual) book at me... It feels so good for "us" to be back to how we were now I'm learning to keep a lid on things!

However, it's almost Valentine's day so this has got to be said...

I love you, Anita... Truely, deeply, always & forever and totally unconditionally... *senses the incoming volley of books!*

Not posted...

Not posted for a few of days, I know... Not really got much to say, I guess...? Still getting into the habit too...

Symptoms wise, some stiffness atmo but othwerwise, thankfully, all pretty good. My carer & cleaner both commewnt my movement's getting better so, hopefully, things are on the up!

In saying that, mobility is gradually getting better and bladder control seems to be returning, thank goodness.

I'm graduaslly learning to 'trust' my new rollator - had it a week now - although, with a tiled floor, mainly still keep the brakes on (rear wheel braking)! That way it doesn't "run away with me"!

Still undecided about taking paracetamol on a regular basis (my carer voiced concerns re liver damage. etc) but, hey, my MS nurse knows I'm taking it (it is prescribed) and I'm not needing anything stronger yet, I take soluble type (which presumably is more easily digested?) and I very rarely take the maximum daily dose, so...

Anyone got any experience/knowledge on this? Either way, if you are reading this, I really would love to hear some quick hellos, etc just to know I'm not just typing to myself, as cathartic as that is!

I WILL keep this up-to-date...

I will, I will!

A better day today!

I woke up today about 9ish having had a good nighth's sleep, laundry all collected by my local launderette (free collection & delivery on service washes) despite the snow on the ground and then went back to bed, dozed with my usual BBC Radio 5 Live on then was up & about getting fresh clothes sorted myself instead of relying on my carer to get me just basic t-shirts & undies out (all I wanted).

Once Adian (my carer) came - an earlier visit today - I had a good shower and got the decent clothes on, feeling reasonably steady on my feet. Confidence is still... Lacking, but getting better :) I'm sure the frame will help too... :D

I'm starting to get to grips with settging up my budget now I'm in my new home. I feel really fortunate that my Social Worker got me this lovely, spacious, really accessible flat right on the quayside. Still not getting out & about but... That'll come! Anyway... Who wants to get out and about in this cold, snowy weather?!?

Still, nice to look out on the snowy green behind my place though!

Monday's update - only a day late!

Ok, so I didn't succeed in my first day's blogging! Anyway, here I am, so... Let's begin!?! Starting with Monday's update in this post...

Sunday night was actually a reasonably decent time getting to bed, slept well anfd woke up refreshed but... Then the fatigue kicked in once up & about... Even dozed on the loo 'til my carer arrived :( Thankfully got better as the day went on...

Still using a chair back to aid my stability/ confidence getting around in my flat. Just a stick doesn't saeem to be quite enough. Saw physio last week and she's arranging a "walking aid" - guess that's frame? :S Still, be good to use something proper I guess... Hopefully will help address my posture etc too so I get my confidence back to ditch it asap!

Emotionally... Hmmm, had a low patch during thew fatigue spell, but... Generally an ok day...

Really glad to have got things sorted with my 'girlfriend'... Used the quotes cos, well, we're great friends and... Who knows what the future may hold! I love you so very much though, Anita!